Our virtual Community is a place to share, learn & support patients with SM & CM, loved ones & the medical professionals that treat them.

SM & CM Wristbands

Syringomyelia & Chiari Malformation Awareness Wristbands <click here> to order yours now and help support our causes. 

SM & CM T-Shirt

Syringomyelia & Chiari Malformation Awareness "Together We Are Stronger" T-Shirt. 

<click here> to order. 

Rogers TV- Talk Durham Nov. 27/13

Debra Hutchison (Host Rogers TV- Talk Durham), Nancy (CFSCN Member), Carion Fenn (Founder), Carion Fenn Syringomyelia & Chiari Network), & Kellie (CFSCN Member).

Talk Durham - Rogers TV- Channel

Debra Talked to Carion, members of our social  network (NancyKellie), & Callers including Jamie McDonald, Sue, Harlen & Christine about the issues faced with living with Syringomyelia & Chiari Malformation. We will have segments available online soon. The response was that the show was very informative, and a great resource to help educate others. Click on the thumbnail below to view videos. 

A full copy of the show can be ordered by clicking the below link: 

Rogers TV Dub Request (Click here)

MP Chris Alexander & Carion Fenn

Carion Fenn(Left), Founder of Carion Fenn Syringomyelia & Chiari Network with Chris Alexander, Canada's Minister of Citizenship and Immigration & (MP) Member of Parliament Ajax-Pickering at the Chris Alexander MP's Fall Fete September 22, 2013. 

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Statistics:

 SM & CM Statistics (Social Network):

 

We welcome and need those who suffer with Syringomyelia and Chiari Malformation to join our Social Network.  This will enable us to provide a more accurate count of people living with these conditions.  In addition, it will give people the opportunity to find someone in their area who shares these conditions.  The social network allows you to see how many people in a specific country, state or province has our conditions. Your membership is important to us and we want to ensure that you have the statistics and information you need at the click of a button in seconds - so please join us by clicking on the network button above.

Petition:

Petition to the Government of Canada and Members of Parliament: 


We are in the process of petitioning The Government of Canada and Members of Parliament to recognize our Syringomyelia & Chiari Malformation Day July 17 and the Month of September Federally:

We had the opportunity to collect signatures which was a great success and we thank those who helped us collect signatures. We thank MP Chris Alexander's office for their help and guidance in getting our petition presented to The Government and Canada and Members of Parliament. We are hoping this will be recognized so that we can help further our causes and help make a difference.  

Special thank you to the following people or local Network for their help in helping us to collect Signatures to Petition the Canadian Government/ Parliament to recognize our conditions federally: 

Local Network

St. Catherine's, ON Canada (Lori Hart)

Nicole McFadden

Ken Anderson

Mary Rudy

Jeremy Webb

_________________________________

Proclamation Received

Town of Ajax
(Mayor Steve Parish)
City of Toronto
(Mayor Rob Ford)
City of Oshawa
 
City of Markham 
City of Pickering
Town of Fort Erie
 
Town of Oakville, On Canada
(Mayor Rob Burton) 
Syringomyelia & Chiari Malformation dates July 17 and September formally recognized by the Town of AJAX, On Canada Mayor Steve Parish for the first time in Canadian History in 2013. 

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Member (SM)
Stephanie deJager SM left a comment for matthewrich
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Member (SM)
Louis SM replied to Carion (Admin)'s discussion Mervin Webb (CM) Decompression Surgery July 13, 2014 in the group Surgery Centre
"Hi Merve, I am interested on how your recovery is going.  "
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Member (SM)
Phillip Reaney (SM) is now a member of Carion Fenn Syringomyelia & Chiari Network
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"Sending tons of positive thoughts your way Mary. Hang in there XO"
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Headaches

Hi everyone!Since last fall I have been getting daily headaches. My neurosurgeon was very concerned…See More
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    Blog Posts

    Support Group Meeting (Syringomyelia & Chiari Malformation) Durham Network-September 13, 2014 1pm-4pm Abilities Centre

    Posted by Carion (Admin) on August 12, 2014 at 12:18am 2 Comments

    Join us on September 13, 2014 1pm - 4pm for our Durham Network Support Group Meeting and get a change to receive our SM & CM Awareness Package FREE: 1 T-Shirt, 2 Wristbands (Blue & Purple), 4 cards. The names of everyone who…

    Continue

    Flag Raising Event (Syringomyelia & Chiari Malformation Flag) Month September with Town of Ajax Mayor Steve Parish

    Posted by Carion (Admin) on August 12, 2014 at 12:14am 7 Comments

    September 8, 2014 10:15am 

    Syringomyelia & Chiari Malformation 

    Flag Raising event

    Town of Ajax – Town Hall

    55 Harwood Avenue…

    Continue

    13yo daughter just diagnosed with 5mm Chiari

    Posted by Miriam MacLaren (SM) (CM) on August 11, 2014 at 5:22pm 3 Comments

    She has been having what we suspected was seizure activity and saw a local pediatrician. He's very good and sent her for an MRI and EEG. 



    The MRI showed the 5mm non-pointed protusion of the tonsils. The MRI also showed a possible cystic…

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    Your not crazy - your in pain

    Posted by Christine Webb (SM) USA REP on August 11, 2014 at 3:52am 0 Comments

    This is an episode of Doctor Oz, which many of you know is one of my favorite shows because he looks at things that we are always dealing with.. this is an older episode from 2011 about doctors and chronic pain conditions.. he calls them out in…

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    Jamie McDonald Fundraising Adventurer

    Taking part in the Fishermans Friend – Strongman Run

    Being selected to tackle the Fisherman’s Friend, […]

    BBC documentary: Canada, Coast-to-Coast

    Including never-before-seen footage, the BBC produced t […]

    Forum

    Headaches 1 Reply

    Hi everyone!Since last fall I have been getting daily headaches. My neurosurgeon was very concerned and therefore sent me for a MRI, which I had last week. Will be getting my results on September 3rd. I am scared.....just do not seem to have the…Continue

    Started by Mary Rudy (SM). Last reply by Stephanie deJager SM on Sunday.

    SM Friends and more... 2 Replies

    ~Had great conversations this week with 3 awesome members. Its amazing the wealth of information and caring that was shared. Thank you, Louis SM for keeping it going and to N Smith SM and Valerie Butt SM for providing laughter, kinship, and higher…Continue

    Started by Mary Ann Ferrara SM. Last reply by Jill McLaren (SM) Jul 9.

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