Our virtual Community is a place to share, learn & support patients with SM & CM, loved ones & the medical professionals that treat them.

Syringomyelia & Chiari Products



Syringomyelia & Chiari Wristband
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To purchase other Syringomyelia & Chiari

Malformation products click on our Estore tab.

Rogers TV- Talk Durham Nov. 27/13

Debra Hutchison (Host Rogers TV- Talk Durham), Nancy (CFSCN Member), Carion Fenn (Founder), Carion Fenn Syringomyelia & Chiari Network), & Kellie (CFSCN Member).

Talk Durham - Rogers TV- Channel

Debra Talked to Carion, members of our social  network (NancyKellie), & Callers including Jamie McDonald, Sue, Harlen & Christine about the issues faced with living with Syringomyelia & Chiari Malformation. We will have segments available online soon. The response was that the show was very informative, and a great resource to help educate others. Click on the thumbnail below to view videos. 

A full copy of the show can be ordered by clicking the below link: 

Rogers TV Dub Request (Click here)

Network Subscription

Become a Syringomyelia & Chiari Network Subscriber and help support our causes ($5/Year):

 

Subscription (optional). This is not required to be a member of our social network, but rather help us to keep our support systems free. Thanks for your continued support.

 

Snapd Clarington Newspaper

Snapd Clarington

(December 2013 Newspaper, page 16)

We have an article published in the Snapd Clarington Newspaper December issues thanks to Ms. Deb Simic, Publishing Editor. Our Meet & Greet II was also listed on Snap Clarington website.

Charity Village
Awareness Day Calendar

Syringomyelia & Chiari Malformation
July 17 (Day) & September (Month) 

We were able to get Syringomyelia & Chiari Malformation dates listed on the Awareness Calendar for Charity Village. We appreciate their support in listing our conditions awareness dates. 

MP Chris Alexander & Carion Fenn

Carion Fenn(Left), Founder of Carion Fenn Syringomyelia & Chiari Network with Chris Alexander, Canada's Minister of Citizenship and Immigration & (MP) Member of Parliament Ajax-Pickering at the Chris Alexander MP's Fall Fete September 22, 2013. 

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Birthdays

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Together We Are Stronger Campaign

"Together We Are Stronger" Campaign.

A campaign to promote our Syringomyelia & Chiari Malformation Day (July 17) & Month (September). This campaign will highlight how we work together in support of each other to increase awareness. Over the years, we will be doing different projects to increase awareness and support our members.

To check out our News Room <click here>

July 17 we are asking our supporters, members, friends, and family to wear the SM/CM wristbands to show support for our causes and inspire people to tell others about our conditions. We are also asking our supporters, members, friends, and family to change their Facebook profile picture to show the picture of our "Together We Are Stronger Campaign" Poster. Help us increase Awareness because together we are stronger. 

Proclamation Received

City Of Oshawa
Mayor 
Syringmyelia & Chiari Malformation Day July 17, 2014 & Month September 2014
September 30, 2013
Syringomyelia & Chiari Malformation Day


Town of Oakville, ON Canada
September 2013
Chiari Malformation Month

Syringomyelia & Chiari Malformation dates July 17 andSeptember formally recognized by the Town of AJAX, On Canada Mayor Steve Parish

We are pleased to announce that the Mayor Steve Parish of the Town of Ajax in Ontario Canada, presented to Carion Fenn, creator and founder of the Syringomyelia & Chiari Network, a certificate of proclamation recognizing July 17 and the month of September as Syringomyelia and Chiari Malformation awareness dates live on Rogers TV. 

_________________________________________

Petition to the Government of Canada and Members of Parliament: 

We petitioned The Government of Canada and Members of Parliament to recognize our Syringomyelia & Chiari Malformation Day July 17 and the Month of September Federally:

We had the opportunity to collect signatures which was a great success and we thank those who helped us collect signatures. We thank MP Chris Alexander's office for their help and guidance in getting our petition presented to The Government and Canada and Members of Parliament. We are hoping this will be recognized so that we can help further our causes and help make a difference.  

Special thank you to the following people or local Network for their help in helping us to collect Signatures to Petition the Canadian Government/ Parliament to recognize our conditions federally: 

Local Network

St. Catherine's, ON Canada (Lori Hart)

Nicole McFadden

Ken Anderson

Mary Rudy

Jeremy Webb

_________________________________

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Latest Activity


Member (CM)
Miriam MacLaren (SM) (CM) posted a blog post

Surgery is on! No dates yet. Very happy.

I finally had my consult with Dr. Fehlings today. I was nervous, as I knew I wanted/needed the…See More
17 hours ago

Member (SM/CM)
Lisa Perosevic replied to Lisa Perosevic's discussion Looking for a good neurosurgeon in the Toronto area in the group Information for the Newly Diagnosed
"Yes!"
20 hours ago

Member (SM)
Sarah Wesco (SM) replied to Carion (Admin)'s discussion India Taylor upcoming Chiari Malformation Surgery April 14, 2014 (Please Join us in sending your love and support) in the group Surgery Centre
"Good luck and prayers for you and your surgeon!!"
yesterday

Member (SM)
N smith posted a status
"Does this Doctor at Sunnybrook also do surgery?"
yesterday

Member (SM)
N smith replied to Lisa Perosevic's discussion Looking for a good neurosurgeon in the Toronto area in the group Information for the Newly Diagnosed
"Do "
yesterday

Member (SM)
N smith replied to Lisa Perosevic's discussion Looking for a good neurosurgeon in the Toronto area in the group Information for the Newly Diagnosed
" "
yesterday
Profile IconN smith and Julie Moskal joined Christine Webb (SM) USA REP's group
Thumbnail

Information for the Newly Diagnosed

This is where blogs specifically regarding things about SM are listed for those who are looking for…See More
yesterday

Member (SM/CM)
Lisa Perosevic replied to Lisa Perosevic's discussion Looking for a good neurosurgeon in the Toronto area in the group Information for the Newly Diagnosed
"Thanks everyone. The doctor's corner basically only mentions three doctors. Since Dr Tator…"
yesterday

Member (SM)
Caleb M. Mills updated their profile
yesterday

Member (SM)
Caleb M. Mills is now a member of Carion Fenn Syringomyelia & Chiari Network
yesterday

Member (SM)
Christine Webb (SM) USA REP replied to Mary Ann Ferrara SM's discussion Natural Relief & Hope in the group Georgia Network
"There are many alternative treatment options explained in the Alternative Treatment Options group -…"
yesterday

Member (SM)
Christine Webb (SM) USA REP replied to Lisa Perosevic's discussion Looking for a good neurosurgeon in the Toronto area in the group Information for the Newly Diagnosed
"I think you would find more help in the doctors corner where members post their doctors giving them…"
yesterday

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    Blog Posts

    Surgery is on! No dates yet. Very happy.

    Posted by Miriam MacLaren (SM) (CM) on April 15, 2014 at 6:45pm 0 Comments

    I finally had my consult with Dr. Fehlings today. I was nervous, as I knew I wanted/needed the surgery, but was worried that he might not agree.



    However, thankfully, he did agree. He explained that my posterior fossa is too small, and he…

    Continue

    Vote every day in April to help promote our new non-profit organization!

    Posted by Theresa Novy (SM) on April 3, 2014 at 11:50pm 1 Comment

    I am one of your Syringomyelia friends and I need your VOTE.

    I helped started a non-profit called "Stephanie's Dream."  The mission is to provide expensive nutritional lab testing which is needed to help identify…

    Continue

    Annual ASAP CM SM CONFERENCE FOR 2014 IS SCHEDULED AND AVAILABLE!!

    Posted by Christine Webb (SM) USA REP on April 2, 2014 at 8:12pm 1 Comment

    Although we are not directly associated with asap.org, they are a wonderful group that has been around for a very long time helping to bridge the gap between patients and doctors through education and research - each year we provide our members…

    Continue

    2014 Proclamation Request for Syringomyelia & Chiari Malformation Day and Month!

    Posted by Carion (Admin) on March 31, 2014 at 11:30am 0 Comments

    Doing our yearly Proclamation request for Canada, please let us know which Town or City you think we should request proclamations from? We are also challenging others to ask their town's or cities to proclaim our Syringomyelia day July 17…

    Continue

    Forum

    Had anyone tried Reiki Massage? 3 Replies

    Hi, I went to the nail salon last week and did a spa pedicure in one of the massage chairs and didn't think of it being like a regular massage, which my NS told me NOT to have, and afterwards it was like my arms and legs wouldn't really work and…Continue

    Started by Amber McDonald (SM). Last reply by Sarah Lutze (SM) Apr 8.

    SM Friends and more...

    ~Had great conversations this week with 3 awesome members. Its amazing the wealth of information and caring that was shared. Thank you, Louis SM for keeping it going and to N Smith SM and Valerie Butt SM for providing laughter, kinship, and higher…Continue

    Started by Mary Ann Ferrara SM Apr 5.

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