Our virtual Community is a place to share, learn & support those affected with SM & CM, & the medical professionals that treat them.

Patti Dawson Award

Spinal Cord Injury (Ontario) & University Health Network (UHN) Patti Dawson Award recipient our founder Carion Fenn

Town of Ajax Accessible Award

Town of Ajax have selected our Founder, Carion Fenn, for the Accessibility Community Award for 2013. Shawn Collier, Regional Councillor presented Carion Fenn with the Accessibility Award. 

SM & CM Awareness Products

Wristbands <Click Here> 

T-Shirt: <Click Here> 

Cards: <Click Here>

Order your products today and help support our causes. 

Rogers TV- Talk Durham Nov. 27/13

Debra Hutchison (Host Rogers TV- Talk Durham), Nancy (CFSCN Member), Carion Fenn (Founder), Carion Fenn Syringomyelia & Chiari Network), & Kellie (CFSCN Member).

Talk Durham - Rogers TV- Channel

Debra Talked to Carion, members of our social  network (NancyKellie), & Callers including Jamie McDonald, Sue, Harlen & Christine about the issues faced with living with Syringomyelia & Chiari Malformation. We will have segments available online soon. The response was that the show was very informative, and a great resource to help educate others. Click on the thumbnail below to view videos. 

A full copy of the show can be ordered by clicking the below link: 

Rogers TV Dub Request (Click here)

MP Chris Alexander & Carion Fenn

Carion Fenn(Left), Founder of Carion Fenn Syringomyelia & Chiari Network with Chris Alexander, Canada's Minister of Citizenship and Immigration & (MP) Member of Parliament Ajax-Pickering at the Chris Alexander MP's Fall Fete September 22, 2013. 

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Statistics:

 SM & CM Statistics (Social Network):

 

We welcome and need those who suffer with Syringomyelia and Chiari Malformation to join our Social Network.  This will enable us to provide a more accurate count of people living with these conditions.  In addition, it will give people the opportunity to find someone in their area who shares these conditions.  The social network allows you to see how many people in a specific country, state or province has our conditions. Your membership is important to us and we want to ensure that you have the statistics and information you need at the click of a button in seconds - so please join us by clicking on the network button above.

Petition:

Petition to the Government of Canada and Members of Parliament: 


We are in the process of petitioning The Government of Canada and Members of Parliament to recognize our Syringomyelia & Chiari Malformation Day July 17 and the Month of September Federally:

We had the opportunity to collect signatures which was a great success and we thank those who helped us collect signatures. We thank MP Chris Alexander's office for their help and guidance in getting our petition presented to The Government and Canada and Members of Parliament. We are hoping this will be recognized so that we can help further our causes and help make a difference.  

Special thank you to the following people or local Network for their help in helping us to collect Signatures to Petition the Canadian Government/ Parliament to recognize our conditions federally: 

Local Network

St. Catherine's, ON Canada (Lori Hart)

Nicole McFadden

Ken Anderson

Mary Rudy

Jeremy Webb

_________________________________

Proclamation Received

Town of Ajax - (Mayor Steve Parish)
City of Toronto - (Mayor Rob Ford)
City of Oshawa - (Mayor John Henry) 
City of Markham - (Mayor Scarpitti)
City of Pickering - (Mayor David Ryan) 
Town of Oakville - (Mayor Rob Burton) 
 
 
Syringomyelia & Chiari Malformation dates July 17 and September formally recognized by the Town of AJAX, On Canada Mayor Steve Parish for the first time in Canadian History in 2013. 

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    Blog Posts

    Abilities Awards Advocacy Award recipient Carion Fenn

    Posted by Syringomyelia & Chiari Network on November 27, 2014 at 12:36pm 1 Comment

    Please note that our Founder Carion Fenn has won the Advocacy Award from the Abilities Awards. We are thankful for the recognition as this will help us in moving forward. 

    Carion Fenn Syringomyelia & Chiari…

    Continue

    A glimpse at why I am always in pain and why I understand people with disabilities Syringimyelia,Fibromyalgia,Veritgo,Carpaltunnel Restless leg syndrome,Scoliosis,Sleep Apnea, PTSD, BPD,Costochondrit…

    Posted by Martha M Burns on November 17, 2014 at 11:23pm 0 Comments

    A glimpse at why I am always in pain and why I understand people with disabilities Syringimyelia,Fibromyalgia,Veritgo,Carpaltunnel Restless leg syndrome,Scoliosis,Sleep Apnea, PTSD, BPD,Costochondritis,CHF,ADD,Panic…

    Continue

    Awesome Syringomyelia Research from Australia

    Posted by Mary Ann Ferrara SM on November 12, 2014 at 7:25pm 0 Comments

    The most inspiring thing I have seen since my 2011 Diagnosis! A quick share, hope we find a cure very soon. :-)

    http://www.youtube.com/watch?v=_821FdqKZlE

    New Syringomyelia Wristbands courtesy of Patti Dawson

    Posted by Syringomyelia & Chiari Network on November 8, 2014 at 7:00am 2 Comments

    Patti Dawson Award:

    Ms. Dawson was a great advocate for research. This award will help us increase awareness of Syringomyelia being The Spinal Cord Injury it is. Through this award we have funding for…

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    Jamie McDonald Fundraising Adventurer

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    Forum

    What does a syrinx mean? 4 Replies

    I have a 2mm syrinx from the top of my tailbone up to t5. Does having a syrinx mean you have syringomyelia and is something so small able to be the source of my pain?Continue

    Started by Autumn(SM). Last reply by Fleetlordatvar yesterday.

    Sleep 1 Reply

    I am unable to sleep and my eyes are bugging out! I've tried a variety of things  any suggestions...shower, tea, massage, gravel, weed.What do I do?Exhausted and grumpy!Continue

    Started by Tammy Mohammed. Last reply by Jill McLaren (SM) Nov 17.

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