Our virtual Community is a place to share, learn & support those affected with SM & CM, & the medical professionals that treat them.

Patti Dawson Award

Spinal Cord Injury (Ontario) & University Health Network (UHN) Patti Dawson Award recipient our founder Carion Fenn

Town of Ajax Accessible Award

Town of Ajax have selected our Founder, Carion Fenn, for the Accessibility Community Award for 2013. Shawn Collier, Regional Councillor presented Carion Fenn with the Accessibility Award. 

SM & CM Awareness Products

Wristbands <Click Here> 

T-Shirt: <Click Here> 

Cards: <Click Here>

Order your products today and help support our causes. 

Rogers TV- Talk Durham Nov. 27/13

Debra Hutchison (Host Rogers TV- Talk Durham), Nancy (CFSCN Member), Carion Fenn (Founder), Carion Fenn Syringomyelia & Chiari Network), & Kellie (CFSCN Member).

Talk Durham - Rogers TV- Channel

Debra Talked to Carion, members of our social  network (NancyKellie), & Callers including Jamie McDonald, Sue, Harlen & Christine about the issues faced with living with Syringomyelia & Chiari Malformation. We will have segments available online soon. The response was that the show was very informative, and a great resource to help educate others. Click on the thumbnail below to view videos. 

A full copy of the show can be ordered by clicking the below link: 

Rogers TV Dub Request (Click here)

MP Chris Alexander & Carion Fenn

Carion Fenn(Left), Founder of Carion Fenn Syringomyelia & Chiari Network with Chris Alexander, Canada's Minister of Citizenship and Immigration & (MP) Member of Parliament Ajax-Pickering at the Chris Alexander MP's Fall Fete September 22, 2013. 

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Statistics:

 SM & CM Statistics (Social Network):

 

We welcome and need those who suffer with Syringomyelia and Chiari Malformation to join our Social Network.  This will enable us to provide a more accurate count of people living with these conditions.  In addition, it will give people the opportunity to find someone in their area who shares these conditions.  The social network allows you to see how many people in a specific country, state or province has our conditions. Your membership is important to us and we want to ensure that you have the statistics and information you need at the click of a button in seconds - so please join us by clicking on the network button above.

Petition:

Petition to the Government of Canada and Members of Parliament: 


We are in the process of petitioning The Government of Canada and Members of Parliament to recognize our Syringomyelia & Chiari Malformation Day July 17 and the Month of September Federally:

We had the opportunity to collect signatures which was a great success and we thank those who helped us collect signatures. We thank MP Chris Alexander's office for their help and guidance in getting our petition presented to The Government and Canada and Members of Parliament. We are hoping this will be recognized so that we can help further our causes and help make a difference.  

Special thank you to the following people or local Network for their help in helping us to collect Signatures to Petition the Canadian Government/ Parliament to recognize our conditions federally: 

Local Network

St. Catherine's, ON Canada (Lori Hart)

Nicole McFadden

Ken Anderson

Mary Rudy

Jeremy Webb

_________________________________

Proclamation Received

Town of Ajax - (Mayor Steve Parish)
City of Toronto - (Mayor Rob Ford)
City of Oshawa - (Mayor John Henry) 
City of Markham - (Mayor Scarpitti)
City of Pickering - (Mayor David Ryan) 
Town of Oakville - (Mayor Rob Burton) 
 
 
Syringomyelia & Chiari Malformation dates July 17 and September formally recognized by the Town of AJAX, On Canada Mayor Steve Parish for the first time in Canadian History in 2013. 

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Latest Activity


Member (SM)
Lori Hart (SM) angel commented on Syringomyelia & Chiari Network's group St. Catharine's Network
"Hi Randy Desjardine ..... Welcome to our family,  Where exactly are you in the Niagara Region?…"
5 hours ago

Member (CM)
Randy DESJARDINE (CM) replied to Mary Rudy (SM)'s discussion "ice Bucket Challenge"
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Military Network

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Randy DESJARDINE (CM) commented on Syringomyelia & Chiari Network's group St. Catharine's Network
"I am new to the area and I am looking for a good Chiari Doctor in the Niagara region."
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St. Catharine's Network

St. Catharine's NetworkWelcome to St. Catharine's Network, A Network Group in St. Catherine's, On…See More
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Randy DESJARDINE (CM) updated their profile
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Member (CM)
Randy DESJARDINE (CM) commented on Syringomyelia & Chiari Network's group Chiari Malformation (CM)
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Chiari Malformation (CM)

This group is for those who are living with Chiari Malformation. Please join, show your Chiarian…See More
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    Blog Posts

    Update 2+ months after surgery!

    Posted by Mervin Webb on October 15, 2014 at 10:03pm 0 Comments

    Hi Everyone! Here is the final episode of A Mervelous Journey: Beginnings. The Second Season of my journey begins November 3rd. This will include my recovery. Check out the link and spread the word. …

    Continue

    Radio Show...coming soon... your feedback appreciated....

    Posted by Syringomyelia & Chiari Network on October 12, 2014 at 7:25pm 2 Comments

    Radio Show:



    Hey guys, working out the details for a Health Radio Show. Syringomyelia, Chiari Malformation, Spinal Cord Injury etc...wondering if anyone would be interested in being interviewed, or should we consider recording part of…

    Continue

    Snap Ajax October 2014 Edition Re: Syringomyelia & Chiari Network Flag Raising

    Posted by Syringomyelia & Chiari Network on October 3, 2014 at 9:26am 0 Comments

    Please see below link to Snap Ajax, we have an article in their about our Syringomyelia & Chiari Malformation Flag Raising. …

    Continue

    What do I do?

    Posted by Andrew Timothy Jucutan on September 27, 2014 at 4:09pm 2 Comments

    So I have this Syringohydromaelia thing and no one around me cares to research it themselves. They all seem to think that because I've been blessed I guess with a body that "Looks"in shape, so they all assume I'm alright. I hate showing my pain and… Continue

    Jamie McDonald Fundraising Adventurer

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    Forum

    "ice Bucket Challenge" 6 Replies

    OMG we must all put on our thinking caps and come up with a simple and creative idea like ALS did, "The Ice Bucket Challenge". This has spread world wide so quickly and we could enormously benefit from getting SM and CM exposure. ALS has become a…Continue

    Started by Mary Rudy (SM). Last reply by Randy DESJARDINE (CM) 5 hours ago.

    Headaches 10 Replies

    Hi everyone!Since last fall I have been getting daily headaches. My neurosurgeon was very concerned and therefore sent me for a MRI, which I had last week. Will be getting my results on September 3rd. I am scared.....just do not seem to have the…Continue

    Started by Mary Rudy (SM). Last reply by Sherry Bourque SM Oct 15.

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