Our virtual Community is a place to share, learn & support patients with SM & CM, loved ones & the medical professionals that treat them.

SM & CM Wristbands

Syringomyelia & Chiari Malformation Awareness Wristbands <click here> to order yours now and help support our causes. 

SM & CM T-Shirt

Syringomyelia & Chiari Malformation Awareness "Together We Are Stronger" T-Shirt. 

<click here> to order. 

Rogers TV- Talk Durham Nov. 27/13

Debra Hutchison (Host Rogers TV- Talk Durham), Nancy (CFSCN Member), Carion Fenn (Founder), Carion Fenn Syringomyelia & Chiari Network), & Kellie (CFSCN Member).

Talk Durham - Rogers TV- Channel

Debra Talked to Carion, members of our social  network (NancyKellie), & Callers including Jamie McDonald, Sue, Harlen & Christine about the issues faced with living with Syringomyelia & Chiari Malformation. We will have segments available online soon. The response was that the show was very informative, and a great resource to help educate others. Click on the thumbnail below to view videos. 

A full copy of the show can be ordered by clicking the below link: 

Rogers TV Dub Request (Click here)

MP Chris Alexander & Carion Fenn

Carion Fenn(Left), Founder of Carion Fenn Syringomyelia & Chiari Network with Chris Alexander, Canada's Minister of Citizenship and Immigration & (MP) Member of Parliament Ajax-Pickering at the Chris Alexander MP's Fall Fete September 22, 2013. 

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Petition:

Petition to the Government of Canada and Members of Parliament: 


We are in the process of petitioning The Government of Canada and Members of Parliament to recognize our Syringomyelia & Chiari Malformation Day July 17 and the Month of September Federally:

We had the opportunity to collect signatures which was a great success and we thank those who helped us collect signatures. We thank MP Chris Alexander's office for their help and guidance in getting our petition presented to The Government and Canada and Members of Parliament. We are hoping this will be recognized so that we can help further our causes and help make a difference.  

Special thank you to the following people or local Network for their help in helping us to collect Signatures to Petition the Canadian Government/ Parliament to recognize our conditions federally: 

Local Network

St. Catherine's, ON Canada (Lori Hart)

Nicole McFadden

Ken Anderson

Mary Rudy

Jeremy Webb

_________________________________

Proclamation Received

Town of Ajax
(Mayor Steve Parish)
City of Toronto
(Mayor Rob Ford)
City of Oshawa
 
City of Markham 
City of Pickering
Town of Fort Erie
 
Town of Oakville, On Canada
(Mayor Rob Burton) 
Syringomyelia & Chiari Malformation dates July 17 and September formally recognized by the Town of AJAX, On Canada Mayor Steve Parish for the first time in Canadian History in 2013. 

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Latest Activity


Member (SM/CM)
kim mcleod ACM/SM posted a blog post

Revenue Canada

Hello everyone. I am wondering if anyone can help be to become recognized by revenue canada as a…See More
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Member (SM/CM)
kim mcleod ACM/SM updated their profile
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Member (SM/CM)
kim mcleod ACM/SM and Pete Johnston (SM) (ACM) are now friends
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Member (SM)
Ken Anderson sm joined Christine Webb (SM) USA REP's group
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Information for the Newly Diagnosed

This is where blogs specifically regarding things about SM are listed for those who are looking for…See More
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Welcoming Angel
Jill McLaren (SM) left a comment for Rachel rigg
"Have a Wondeful Birthday Rachel !!!  Best wishes, Jill xo"
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    Blog Posts

    Revenue Canada

    Posted by kim mcleod ACM/SM on July 30, 2014 at 3:45pm 0 Comments

    Hello everyone. I am wondering if anyone can help be to become recognized by revenue canada as a person with a disability. I do not qualify supposedly as a person with a disability however would still like to be able to benefit from the different… Continue

    Cleveland Clinic

    Posted by Larry Clark on July 30, 2014 at 1:45am 0 Comments

    I am looking for anyone that may have been to one of the SM Neurosurgeons at the Cleveland Clinic. I have read the Bio's of the team there that have a special interest in SM and have it narrowed down to 2 that really stand out above the rest. Dr… Continue

    Local Support Group Meetings: Your suggestions and ideas required

    Posted by Syringomyelia & Chiari Network on July 24, 2014 at 12:15pm 3 Comments

    Support Group Meetings (Syringomyelia & Chiari Malformation) :

    We would like to know what you want from a support group meeting? We want to ensure that we have support group meetings available in as much local areas as…

    Continue

    Our GoFundMe Page is live, please donate it you can.

    Posted by Syringomyelia & Chiari Network on July 10, 2014 at 10:47am 0 Comments

    Members;

    Below please find the text from our GoFundMe page, for donations please click on the link below:…

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    Jamie McDonald Fundraising Adventurer

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    Forum

    SM Friends and more... 2 Replies

    ~Had great conversations this week with 3 awesome members. Its amazing the wealth of information and caring that was shared. Thank you, Louis SM for keeping it going and to N Smith SM and Valerie Butt SM for providing laughter, kinship, and higher…Continue

    Started by Mary Ann Ferrara SM. Last reply by Jill McLaren (SM) Jul 9.

    Unbearable Searing 15 Replies

    Anyone else have unbearable searing pain at the level of your syrnix? I find mine is aggravated by being upright and doing any activity with my hands. Even if I'm upright and and active for a few minutes.

    Started by Ginger Resler SM. Last reply by Jerri Lynne Hamby Jul 6.

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