Our virtual Community is a place to share, learn & support patients with SM & CM, loved ones & the medical professionals that treat them.

Patti Dawson Scholarship Award

The Spinal Cord Injury Ontario & University Health Network (UHN) have selected our Founder, Carion Fenn, for The Patti Dawson Scholarship Award. 

The Award will be presented to Carion at the 

6th National Spinal Cord Injury Conference

on October 4, 2014 12PM 

Town of Ajax Accessible Award

Town of Ajax have selected our Founder, Carion Fenn, for the Accessibility Community Award for 2013. Shawn Collier, Regional Councillor presented Carion Fenn with the Accessibility Award. 

Upcoming Events

September 8, 2014 10:15am 

Syringomyelia (SM) & Chiari Malformation (CM) 
EVENT: SM & CM Flag Raising Ceremony
Town of Ajax – Town Hall
55 Harwood Avenue
Ajax, ON L1S 2H9 Canada 
www.ajax.ca

Town of Ajax, Mayor Steve Parish, will host a Flag Raising Ceremony for Our Syringomyelia & Chiari Malformation Flag. Our first flag will be raised in honour of Ms. Patti Dawson. Click Here to RSVP.

Our flag will be up from September 8 -14, 2014. 

September 13, 2014 1PM - 4PM 

Support Group Meeting

Abilities Centre, 55 Gordon Street Whitby, Ontario L1N 0J2

We will also discuss how the Patti Dawson scholarship Award will impact our community in a positive way through the help and support of this Award. <click here> to RSVP. 

September 15 - 21, 2014

City of Pickering will raised our flag in honour of Syringomyelia & Chiari Malformation Month (September) 

One The Esplanade

Pickering, Ontario, Canada L1V 6K7

www.pickering.ca

SM & CM Awareness Products

Syringomyelia & Chiari Malformation Awareness Wristbands <click here> to order yours now and help support our causes. 

Syringomyelia & Chiari Malformation Awareness "Together We Are Stronger" T-Shirt. 

<click here> to order. 

Rogers TV- Talk Durham Nov. 27/13

Debra Hutchison (Host Rogers TV- Talk Durham), Nancy (CFSCN Member), Carion Fenn (Founder), Carion Fenn Syringomyelia & Chiari Network), & Kellie (CFSCN Member).

Talk Durham - Rogers TV- Channel

Debra Talked to Carion, members of our social  network (NancyKellie), & Callers including Jamie McDonald, Sue, Harlen & Christine about the issues faced with living with Syringomyelia & Chiari Malformation. We will have segments available online soon. The response was that the show was very informative, and a great resource to help educate others. Click on the thumbnail below to view videos. 

A full copy of the show can be ordered by clicking the below link: 

Rogers TV Dub Request (Click here)

MP Chris Alexander & Carion Fenn

Carion Fenn(Left), Founder of Carion Fenn Syringomyelia & Chiari Network with Chris Alexander, Canada's Minister of Citizenship and Immigration & (MP) Member of Parliament Ajax-Pickering at the Chris Alexander MP's Fall Fete September 22, 2013. 

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Statistics:

 SM & CM Statistics (Social Network):

 

We welcome and need those who suffer with Syringomyelia and Chiari Malformation to join our Social Network.  This will enable us to provide a more accurate count of people living with these conditions.  In addition, it will give people the opportunity to find someone in their area who shares these conditions.  The social network allows you to see how many people in a specific country, state or province has our conditions. Your membership is important to us and we want to ensure that you have the statistics and information you need at the click of a button in seconds - so please join us by clicking on the network button above.

Petition:

Petition to the Government of Canada and Members of Parliament: 


We are in the process of petitioning The Government of Canada and Members of Parliament to recognize our Syringomyelia & Chiari Malformation Day July 17 and the Month of September Federally:

We had the opportunity to collect signatures which was a great success and we thank those who helped us collect signatures. We thank MP Chris Alexander's office for their help and guidance in getting our petition presented to The Government and Canada and Members of Parliament. We are hoping this will be recognized so that we can help further our causes and help make a difference.  

Special thank you to the following people or local Network for their help in helping us to collect Signatures to Petition the Canadian Government/ Parliament to recognize our conditions federally: 

Local Network

St. Catherine's, ON Canada (Lori Hart)

Nicole McFadden

Ken Anderson

Mary Rudy

Jeremy Webb

_________________________________

Proclamation Received

Town of Ajax
(Mayor Steve Parish)
City of Toronto
(Mayor Rob Ford)
City of Oshawa
 
City of Markham 
City of Pickering
Town of Fort Erie
 
Town of Oakville, On Canada
(Mayor Rob Burton) 
Syringomyelia & Chiari Malformation dates July 17 and September formally recognized by the Town of AJAX, On Canada Mayor Steve Parish for the first time in Canadian History in 2013. 

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    Blog Posts

    Pain relief remedies for syrinx

    Posted by Sean Jensen on August 29, 2014 at 12:44am 1 Comment

    My biggest issues, are headaches, nerve pain and deep throbbing pain all over my left side.  Shoulder, chest, side, back, and left arm.  I do not want to take nerve medicine, an I dont want to be taking heavy pain meds.  I take advil every now…

    Continue

    Help Create our Syringomyelia & Chiari Song....We want to hear from you.

    Posted by Syringomyelia & Chiari Network on August 28, 2014 at 10:03am 1 Comment

    SEPTEMBER Syringomyelia & Chiari Malformation Month deserve our own song, What do you think? Jeanette Sipos (Jette) and I think we should put the words together that we would like to hear in a song that express how we feel living with…

    Continue

    Always Being So Tired.....................

    Posted by Ian Levinson SM on August 27, 2014 at 10:11pm 8 Comments

    I'm sure this has been brought up before, but I cant find any information on it. 
    One of the main complaints we have is being so tired.
     
    My question. Is there anything besides caffeine to take that will help us…
    Continue

    Spinal Cord Injury Ontario & University Health Network selected Carion Fenn as The Patti Dawson Award recipient

    Posted by Syringomyelia & Chiari Network on August 27, 2014 at 7:23pm 6 Comments

    To our members:



    I love you guys. You are my family and family stick together. It gives me great pride, and I’m honoured to be recognized by the Spinal Cord Injury Ontario, University Health Network for the Patti…

    Continue

    Jamie McDonald Fundraising Adventurer

    Taking part in the Fishermans Friend – Strongman Run

    Being selected to tackle the Fisherman’s Friend, […]

    BBC documentary: Canada, Coast-to-Coast

    Including never-before-seen footage, the BBC produced t […]

    Forum

    "ice Bucket Challenge" 2 Replies

    OMG we must all put on our thinking caps and come up with a simple and creative idea like ALS did, "The Ice Bucket Challenge". This has spread world wide so quickly and we could enormously benefit from getting SM and CM exposure. ALS has become a…Continue

    Started by Mary Rudy (SM). Last reply by Mary Rudy (SM) on Thursday.

    Headaches 6 Replies

    Hi everyone!Since last fall I have been getting daily headaches. My neurosurgeon was very concerned and therefore sent me for a MRI, which I had last week. Will be getting my results on September 3rd. I am scared.....just do not seem to have the…Continue

    Started by Mary Rudy (SM). Last reply by Mary Rudy (SM) Aug 21.

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