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I finally had my consult with Dr. Fehlings today. I was nervous, as I knew I wanted/needed the surgery, but was worried that he might not agree.
However, thankfully, he did agree. He explained that my posterior fossa is too small, and he…
I am one of your Syringomyelia friends and I need your VOTE.
I helped started a non-profit called "Stephanie's Dream." The mission is to provide expensive nutritional lab testing which is needed to help identify…Continue
Although we are not directly associated with asap.org, they are a wonderful group that has been around for a very long time helping to bridge the gap between patients and doctors through education and research - each year we provide our members…Continue
Doing our yearly Proclamation request for Canada, please let us know which Town or City you think we should request proclamations from? We are also challenging others to ask their town's or cities to proclaim our Syringomyelia day July 17…Continue
Hi, I went to the nail salon last week and did a spa pedicure in one of the massage chairs and didn't think of it being like a regular massage, which my NS told me NOT to have, and afterwards it was like my arms and legs wouldn't really work and…Continue
Started by Amber McDonald (SM). Last reply by Sarah Lutze (SM) Apr 8.
~Had great conversations this week with 3 awesome members. Its amazing the wealth of information and caring that was shared. Thank you, Louis SM for keeping it going and to N Smith SM and Valerie Butt SM for providing laughter, kinship, and higher…Continue
Started by Mary Ann Ferrara SM Apr 5.