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Joanne Mclaughlin SM Online
I have a syrinx in my thoracic & lumbar spine. I have developed a varus alignment & charcot joints which are crippling my feet and legs. Wondered if anyone else had this problem & what their Dr's were doing to help?
We are doing everything we can to help make a difference for all of us. We are all in this together, and we need to support each other. We would like to invite you to attend our flag raising ceremony this Monday…Continue
I'm really considering stopping all local support group meetings, and perhaps just have the online one. People are complaining that there's not support but how could be better provide support for those who need it.
I am so curious to know how the on line support group meeting was on Saturday. Please tell us all about it. Unfortunately I could not participate because I do not have the proper equipment.
Started by Mary Rudy (SM) 8 hours ago.
OMG we must all put on our thinking caps and come up with a simple and creative idea like ALS did, "The Ice Bucket Challenge". This has spread world wide so quickly and we could enormously benefit from getting SM and CM exposure. ALS has become a…Continue
Started by Mary Rudy (SM). Last reply by Mary Rudy (SM) Aug 28.